News

After gaining control of my health with Trikafta, I decided to pursue a career as a respiratory therapist. That’s when I realized that my own health journey had given me the empathy and compassion to ...
When my two children were diagnosed with CF, our lives were overtaken by treatments, hospital stays, and endless medications. The strain wasn’t just physical — it also deeply affected our mental ...
As a Latina mother of a child with cystic fibrosis, I aim to raise CF awareness and combat stigma in the Latino community by advocating for understanding, care, and support for families like mine.
I achieved my dreams of becoming a veterinarian and growing my family, all while navigating highs and lows with my cystic fibrosis.
Cystic fibrosis is often described as an invisible battle — one that many people don’t understand unless they’ve lived it or loved someone who has. It’s a genetic condition that demands daily ...
For most CFers, we just want to be “normal” but sometimes you must be careful what you wish for. I was unprepared for adulthood. Once comfortable with the idea of dying young, I now struggle to adapt ...
For many people, aging is an inevitable part of life, bringing with it the expected changes: wrinkles, slower metabolism, and the occasional creaky joint. But for those of us with cystic fibrosis, ...
Ready to help raise cystic fibrosis awareness on social media and beyond? Download the graphics you need to help share your story.
With topics ranging from emotional health to treatments, the blog is a platform to share your unique story. We invite adults and teens with CF, parents, siblings, spouses, friends, loved ones, ...