As a neurodegenerative disease characterized by childhood onset dementia, Sanfilippo syndrome causes immense suffering in many ways, including pain, loss of speech, extreme agitation, and distress, ...

As a neurodegenerative disease characterized by childhood onset dementia, Sanfilippo syndrome causes immense suffering in many ways, including pain, loss of speech, extreme agitation, and distress, ...

As a neurodegenerative disease characterized by childhood onset dementia, Sanfilippo syndrome causes immense suffering in many ways, including pain, loss of speech, extreme agitation, and distress, ...

Sanfilippo syndrome is a fatal, childhood, neurodegenerative, disorder—with no approved treatment—that involves neuroinflammation among multiple pathologies. Characterized by childhood onset dementia, ...

A TikTok video and a trip to the pediatrician ultimately led to Lydia Rachal's diagnosis with the rare Sanfilippo syndrome A Louisiana mom of two helped uncover her daughter's diagnosis with a serious ...

COLUMBUS, Ohio — Growing up, Clark Willmore always dealt with a curved back and was "a little clumsy," according to his dad Japeth. His family decided to take Clark to the doctor to learn more about ...

ATLANTA — His birthday cake says "Cure Beckham." And in their hearts, his family truly believes it's possible. Sunday marked World Sanfilippo Awareness Day, honoring children fighting a devastating ...

When 3-year-old Olivia (Liv) Stoop of Muskego was very little, she was "obsessed" with her baby dolls that had diapers she could change. When her baby brother Liam was born on May 5, she begged her ...

PALM COAST — As the U.S. House of Representatives passed a bill earlier this month that could result in a ban of the wildly popular social media site TikTok in the United States, a Flagler County ...

Torrance, California, June 21, 2024 (GLOBE NEWSWIRE) -- As a neurodegenerative disease characterized by childhood onset dementia, Sanfilippo syndrome causes immense suffering in many ways, including ...